10 jähriges Jubiläum der SHG Mainz
Die SHG Mainz (Sebst Hilfe Grupppe) feiert am 14. Dezember ihr 10-jähriges Bestehen! Herzlichen Glückwunsch an Hermann Götz! Gemeinsam mit dem Universitären Zentrum für Autoimmunität der Universitätsmedizin Mainz und der Rheumaliga RLP veranstaltet sie deshalb am 14. Dezember eine interessante Tagung in Mainz. Auf der Tagung wird die Vaskulitis aus drei verschiedenen Perspektiven betrachtet. Diagnose […]
How to improve health outcomes and care
THE VOICES STUDY New research from the University of Aberdeen has for the first time provided evidence of how best to deliver effective services that will improve health outcomes and experiences of care for the thousands of people across the UK living with rare conditions such as vasculitis. Care for people with vasculitis is organised […]
2nd European AAV Patient Summit Amersfoort
This event is the follow-up to the first patient summit that took place two years ago in Madrid. During that event, doctors and patients were brought together to discuss the typical challenges doctors and patients face when it comes to caring for patients with ANCA-associated vasculitis (AAV). One of the outcomes in Madrid was that […]
AIVA a New vasculitis organization in Italy
In July AIVA joined us at Vasculitis International. On Thursday july 26th 2024 this brand new vasculitis group was officially presented to the wider public, including the Italian parliament. AIVA(Associazione Italiana Vasculiti ANCA) focuses on ANCA-associated forms of vasculitis and they want to bridge the information gap, enhance information and increase awareness of AAV at […]
Takayasu France
We are very happy to welcome L’Association Takayasu France, as a member. Takayasu is a very rare disease, even compared to other forms of vasculitis. According to her president Christine Nicollet, Takayasu France exists to let these patients know that they are not alone. That there is an organization out there that can help them […]
2024 Barcelona Patient Conference
Following the success of the 2022 Vasculitis Patient Conference another one was organized in 2024 linked to the 21st International Vasculitis Workshop in Barcelona. Three members of Vasculitis International closely worked together with the Vasculitis Foundation (the patient organization from the USA) in order to make this happen. […]
GSK Animation video about EGPA
GSK (Glaxo Simih Kline) developed an interesting small animation video about EGPA It can be viewed here.
Patient Conference Dublin
On April 3-6 the most important scientifice conference on vasculitis took place in Dublin . It was the 20th International Vasculitis and ANCA Workshop. Preceding this scientific conference a patient conference was organized by Vasculitis Ireland Awareness and supported by a team from Vasculitis International and a number of international young researchers. They also interviewed […]
Results ADVOCATE study in NEJM
On February 18th 2021 the results of an important clinical study were published in the New England Journal of Medicine. The trial was conducted from March 15, 2017, until November 1, 2019 (last trial visit). In a phase 3 randomized trial (ADVOCATE) the avacopan product was compared with a tapering schedule of prednisone […]