AEVASI (Spain) AIVA Italy APACS (Italy) Association Takayasu France ATAK (Takayasu Spain) ELEANA (Greece) France Vascularites Kosapo (Japan) SHG Mainz (Germany) SHG Frankfurt (Germany) SHG Nordbayern (Germany) SHG Sachsen (Germany) VASAS (Switzerland) Vasculitis Awareness Ireland Vasculitis Foundation (USA) Vasculitis Foundation (Canada) Vasculitis (Poland) Vasculitis Society (India) Vasculitis Stichting (Netherlands) Vasculitis UK (United Kingdom) Vaskuliittiyhdistys (Finland) Vaskulitida.cz (Czech Republik)
The latest news......

Germany’s Tag der Selbsthilfe
Germany’s Tag der Selbsthilfe on 16 September highlights the important role of local self-help groups. Vasculitis International is connecting vasculitis SHGs across Germany, combining peer support close to home with wider cooperation, shared knowledge and patient advocacy.

MHRA concludes UK review of avacopan
Where the EU authorisation was revoked outright, MHRA has built in a runway. From 1 September, avacopan can no longer be started in new patients. Existing UK patients, however, can keep receiving it for a defined six-month transition period, with supply guaranteed by the manufacturer — before MHRA formally revokes the UK authorisation on 1 March 2027.

EC revokes Market Authorisation Tavneos®
This is the news we hoped we would not have to publish.
The European Commission has adopted its final decision and revoked the marketing authorisation for TAVNEOS® (avacopan) in the European Union and the European Economic Area.